No, I have not fallen off the face of the earth

I am so glad you are all still here.  I didn't mean to go so long since my last real post.  Really.  This was a really hard week for me emotionally.  And when I hurt, I struggle to write.  I started at least a half dozen posts in my mind, but when I got to the keyboard - nothing.  But, at the same time, it was a good week.  I am learning to snuggle up to my Daddy when I hurt, rather than run away.  Emphasis on learning. 


Jerome got home safe and sound, so Madi and I are both sleeping better.  Madi has, in fact, been full of piss and vinegar (sorry, family saying) since the return of her accomplice.  They have caused plenty of trouble.


Kat's tests all came back normal.  There was nothing they could see that would cause her pain.  We both agreed that the barium xray was one of the coolest things EVER!  Yes, I am raising a nerd prodigy.  She still has pain, but not as constant as before.  She has been on Prevacid for a little over a week, so that may have something to do with it.  She still goes completely pale and weak when an episode hits.  She has two or three episodes per day while she is at school.  Her very sweet teacher has a bean bag in the corner for her - she lays down for a while until the pain subsides, then she gets back up and joins the rest of the class.  She is tired, and tired of hurting. Needless to say, we are headed to Denver in a few weeks.  



I have no idea what to expect when we go to Children's.  We could be up there one day or many.  It all depends on what the doctors think, and what the best course of action will be. 



I have also learned a lot about people through this, and myself.  I have had countless people tell me exactly what I should and should not be doing for my daughter.  Well-meaning people, but still completely uninformed.  People who see my daughter a grand total of 15 minutes or less a week, if at all.  People who I haven't seen in years.  I have actually had people tell me that I was accepting and using a tool of Satan by taking my daughter to a traditional doctor. 



I cannot help but remember all the times I have given unsolicited advice.  How many times have you?  And how often do we really have no business stating our opinion?  I wonder how many hearts I have grieved in my ignorance.